Emory got some blood from Sarah and I for additional testing regarding the possible kidney transplants. While I am still waiting to hear if everyone's blood all matches up, I received an approval letter from Social Security. I'm officially disabled! Haha I don't know whether to laugh or cry. The Administrative Law Judge reviewed my case and approved it without the need for a hearing. But I am on the verge of receiving a transplant, which would (hopefully) change me back to being un-disabled (at least in regards to my End Stage Renal Failure).
Although, SS also approved me on the problem with my back and legs. So I gotta get all that fixed up too.
One step at a time.
Wednesday, March 13, 2013
Thursday, March 7, 2013
The Most Amazing Phone Call
It was a dark and stormy night. No, wait that's not it. Let me start over...
The phone rang on a regular Tuesday night. (It really was storming at the time) At first, I didn't understand what she was saying. Our home phone doesn't have caller ID, so I never know who is calling us. I could tell that it was my sister, but it took me a minute to understand her because she was so excited and screaming. Then I heard her. "Erica from Emory called because they found a match and they want to know how fast I can get my bloodwork done to double-check the crossmatch." Me: "They WHAT?" Sarah: "Jenny, there's a match, you are getting your kidney!" Me: "I'M GETTING A KIDNEYYYYY!!!" Mark was upstairs, and I wanted to make sure he heard me (probably along with the neighbors in a 4-house radius) "I'M GETTING A KIDNEYYYYY!!!!" OMG OMG OMG OMG OMG OMG OMG
So, Sarah will be donating a kidney to someone she doesn't even know so that I can receive a kidney from someone who doesn't know me. This is all from Emory's Paired Donor Exchange Program. I don't know if it is just one other pair of people that will swap with Sarah and I or if more pairs are involved. It could be local people or it could be people from clear across the country. I hope I can find out more soon.
I wish I knew when it will happen and how long to expect to wait. But I don't know anything else. I hope this is it. I know that things can fall through, I know that sometimes the double-check discovers something that will call it all off. But I don't want it to happen unless this is my perfect kidney. And also for the other recipient(s) involved. I don't want Sarah's life-saving and completely selfless act to be for naught. I want the person who receives Sarah's kidney to go on and live a long and healthy life. And I also want that for me. I want to raise my children and see them grow up and have children of their own. I want to grow old with Mark. And I want to be DONE with dialysis!
As soon as the phone rings again, I'll post more. Until then, I'll be over here praying.
The phone rang on a regular Tuesday night. (It really was storming at the time) At first, I didn't understand what she was saying. Our home phone doesn't have caller ID, so I never know who is calling us. I could tell that it was my sister, but it took me a minute to understand her because she was so excited and screaming. Then I heard her. "Erica from Emory called because they found a match and they want to know how fast I can get my bloodwork done to double-check the crossmatch." Me: "They WHAT?" Sarah: "Jenny, there's a match, you are getting your kidney!" Me: "I'M GETTING A KIDNEYYYYY!!!" Mark was upstairs, and I wanted to make sure he heard me (probably along with the neighbors in a 4-house radius) "I'M GETTING A KIDNEYYYYY!!!!" OMG OMG OMG OMG OMG OMG OMG
So, Sarah will be donating a kidney to someone she doesn't even know so that I can receive a kidney from someone who doesn't know me. This is all from Emory's Paired Donor Exchange Program. I don't know if it is just one other pair of people that will swap with Sarah and I or if more pairs are involved. It could be local people or it could be people from clear across the country. I hope I can find out more soon.
I wish I knew when it will happen and how long to expect to wait. But I don't know anything else. I hope this is it. I know that things can fall through, I know that sometimes the double-check discovers something that will call it all off. But I don't want it to happen unless this is my perfect kidney. And also for the other recipient(s) involved. I don't want Sarah's life-saving and completely selfless act to be for naught. I want the person who receives Sarah's kidney to go on and live a long and healthy life. And I also want that for me. I want to raise my children and see them grow up and have children of their own. I want to grow old with Mark. And I want to be DONE with dialysis!
As soon as the phone rings again, I'll post more. Until then, I'll be over here praying.
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